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Working together to collect and use high quality data to advance personalized care
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Rapid Expansion and Transition to Remote Measurement-Based Care in Response to COVID-19
Physiatrists and clinicians across CAMH routinely use data from questionnaire assessments completed by patients in the clinic to inform clinical decisions. As clinics transitioned to virtual care visits, the team worked in parallel to enable clinics to e-mail a secure link to patients to complete questionnaires ahead of their virtual appointments. The assessment scores are automatically calculated and summary of results returned to the health care provider. Remote measurement-based care has been implemented for 8 structured care pathways including a new dedicated electronic referral and care pathway for health care workers during this challenging time.
Linking Biobank Samples with Structured Measurement-Base Care Pathways
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Linking Biobank Samples to Patient Care
Discovering new biomarkers has the potential to help clinicians identify the most effective treatment for
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DNA to the biobank. Additionally, the BrainHealth Databank has been awarded an Accelerator Grant in Genomic Medicine by the McLaughlin Centre at the University of Toronto to support the genotyping analysis of these samples.
A Collaborative and Iterative Patient-Centered Approach
Characterizing mental health trajectories to advance personalized care
Enhancing Patient Care and Experience
The BrainHealth Databank team has adopted a design-thinking approach to developing a Research and Care Coordination Portal. This approach will facilitate care delivery and integrated collection of research measures, including biobank samples and behavioural measures form wearables. In partnership with MetaCell, a neuroscience software company, the team conducted a virtual stakeholder engagement process - with participation from over 75 stakeholders from across CAMH - consisting of interviews and interactive workshops to gather and analyze Portal requirements. The findings will be used to create a road map for developing an innovative and interactive mental health Portal to enhance patient care and experience.
Looking Ahead
In collaboration with the MDD-ICP, the team is initiating analysis of the high-quality data collected electronically from more than 700 patients. These results will inform quality improvement activities, as well as accelerate efforts to launch the MDD-ICP visual patient-level treatment dashboard for enhancing clinical decision-making. In parallel, the team has partnered with the co-chair of the CAMH Patient Advisory Committee and Masters for Design for Health trainee at the Ontario College for Art and Design University (OCAD) to use human-centered design in mental health to advance the development of a patient-facing clinical journey dashboard that empowers patients and improves their care experience.
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Acknowledgements
Thank you to the CAMH Discovery fund for making this possible and to the CAMH-wide BrainHealth Databank team for their contributions and hard work.
Dr. Joanna Yu, BHDB
Senior Project Manager
Natalie Freeman,
Biobank Manager
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